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Clients & Collaborations

Backpack Health works with key organizations that make a difference for patients. Please let us know if you'd like to speak about Backpack Health for your organization.

Foundations & Advocacy Groups

  • CAN is America’s leading caregiver organization working to improve the quality of life for those who care for loved ones with various conditions, disease, or the frailties of old age.

    Press Release
  • The Marfan Foundation creates a brighter future for everyone affected by Marfan syndrome and related disorders.

    Press Release

  • Project Alive is a non-profit organization dedicated to finding a cure for Hunter Syndrome (Mucopolysaccharidosis II) through research and advocacy.

    Press Release
  • AAKP is dedicated to improving the lives and long-term outcome of kidney patients through education, advocacy, patient engagement and the fostering of patient communities.

  • AIU creates a brighter future for everyone affected by Adrenal Insufficiency with the help of Backpack Health.

    Press Release
  • Allergy & Asthma Network is the leading national nonprofit organization dedicated to ending needless death and suffering due to asthma, allergies and related conditions.

  • Ben’s Friends is a network of safe and supportive patient communities for anyone affected by a rare disease or chronic condition. Ben’s Friends is a grassroots organization run by patients for patients.

  • BPAN Warriors is a growing international community of individuals who have loved ones directly affected by Beta-Propeller Protein-Associated Neurodegeneration (BPAN).

  • CBD is a non-profit organization with a mission of providing support for patients and their families beyond medical treatment.

    Press Release
  • The Cerebral Palsy Research Network (CPRN) is a group of doctors, therapists and patient advocates collaborating to improve treatments and outcomes for people with CP.

  • The CHAMP1 Foundation is committed to finding effective treatments for those affected by CHAMP1 disorders.

    Press Release

  • CLOVES Syndrome Community supports, educates, empowers and improves the lives of those affected by CLOVES Syndrome.

  • Cure HHT's mission is to find a cure for HHT while saving the lives and improving the well-being of individuals and families affected by HHT.

    Press Release

  • DSN is an organization providing support, resources, and education for patients affected by the many forms of Dysautonomia and related conditions.

    Press Release

  • Global community dedicated to saving and improving the lives of those affected by the Ehlers-Danlos syndromes, hypermobility spectrum disorders, and related conditions.

    Press Release
  • EDS Wellness is a non-profit organization providing support, resources, and education for those living with Ehlers-Danlos syndrome.

    Press Release

  • EDS Wisconsin provides support and resources to patients and medical professionals about Ehlers-Danlos syndromes and related conditions.

    Press Release

  • FCS Foundation is a non profit 501 (3)c committed to helping individuals and caregivers affected with Familial Chylomicronemia Syndrome (FCS).

  • The Fabry Support & Information Group (FSIG) is a nonprofit organization dedicated to raising awareness of Fabry disease and providing support services to those living with this rare condition.

    Press Release

  • The Georgia EDS and Hypermobility Network supports persons living with Ehlers-Danlos Syndromes and Hypermobility Spectrum Disorders.

    Press Release

  • Mast Cell Research is an online resource for research articles and publications on Mast Cell Activation Disease (MCAD).

  • MPS Superhero Foundation is a non-profit organization supporting patients and their families with MPS II (Hunter Syndrome).

    Press Release

  • The National Adrenal Diseases Foundation informs, educates, and supports those with adrenal disease and their families.

    Press Release

  • The goal of One Rare will be an organization staffed by young adults with rare disease and their supporters, serving young adults with rare disease.

  • The Canadian Association of PNH Patients connects and supports Canadians affected by Paroxysmal Nocturnal Haemoglobinuria.

    Press Release

  • The Children's Scoliosis Foundation strives to improve the lives of families affected by scoliosis.

    Press Release

  • The mission of U.S. Pain Foundation is

 to empower, educate, connect, and advocate for people living with chronic conditions that cause pain.

  • The Zebra Network works to increase awareness, education, advocacy and support for patients with Ehlers-Danlos Syndrome.

Affiliations

  • StickyJ Medical ID

    StickyJ Medical ID is a leading producer of Medical ID Bracelets for adults and children, whose products have been known for their quality and reliability since 2000.

    Works with Backpack
  • Ambry Genetics

    Ambry is an established leader in clinical genetic diagnostics and genetics software solutions, combining both to offer the most comprehensive testing menu in the industry.

    Press Release
  • Antidote

    Antidote accelerates breakthroughs in potentially life-saving treatments by bridging the gap between medical research and the people who need it.

  • The CARIN Alliance

    CARIN's vision is to bring stakeholders together to advance the ability for consumers and their caregivers to easily get, use, and share their digital health info when, where, and how they want.

  • Findacure

    Findacure is a UK charity that is building the rare disease community to drive research and develop treatments.

  • Health Record Banking Alliance

    The Health Record Banking Alliance (HRBA) is a consortium and advocacy organization for each consumer having their own comprehensive, lifetime, unified health record.

  • MassBio

    MassBio's mission is to advance Massachusetts' leadership in the life sciences to grow the industry, add value to the healthcare system and improve patient lives.

  • MemoryWell

    MemoryWell is a digital platform for elder storytelling and a place to offer advice, support, news, and a community for caregivers of seniors.

  • MyCityMed

    My City Med helps connect patients to the best medical providers in their city, providing a database that is searchable by city, by provider, or by diagnosis.

  • Orphan Drug Consulting

    ODC is a consultancy company acting as advisors for pharmaceutical businesses in Brazil/LATAM's market, focused on rare diseases.

  • Rare Patient Voice

    Rare Patient Voice, LLC provides patients with rare diseases and their caregivers with an opportunity to voice their opinions through surveys and interviews to improve medical products and services.

  • The Society for Participatory Medicine

    The Society for Participatory Medicine’s mission is to improve collaborative partnerships across the continuum of care to optimize health and health care.

  • TechCare

    TechCare connects family caregivers to technology products and services that can help them with their daily caregiving tasks.

  • The vEDS Collaborative

    The vEDS Collaborative is a group of patients, family members, researchers, and clinicians working to advance patient-centered outcomes in vEDS research.