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Children’s Scoliosis Foundation Offers Members Advanced Health Management Tools Via Backpack Health

Backpack Health’s Cloud-Based Mobile App Offers Pediatric Scoliosis Patients and their Caregivers Centralized Platform to Manage Health Data and Connect with Global Scoliosis Community

DOVER, MA and GRASS VALLEY, CA – November 8, 2018 – Backpack Health and the Children’s Scoliosis Foundation (CSF) today announced a partnership that will provide families of children with a scoliosis diagnosis with Backpack Health’s data management application, providing patients and their caregivers with one centralized platform to store, organize, track and share health information.

Scoliosis, a sideways curvature of the spine that is most common in late childhood and early adolescence, affects two to three percent of the population, and the cause is currently unknown. Severe scoliosis can reduce the amount of space in the chest, making it harder for the heart and lungs to function properly.

“Families will travel all over the world to find the right treatment for their child’s scoliosis. They have the added burden of carrying stacks of medical records with them each time they travel, which can be even more overwhelming when caring for more than one child with scoliosis,” said Anne Knox, MS, CEO of The Children’s Scoliosis Foundation. “Backpack Health’s app helps families easily manage all medical information and provides the ability to share information securely with multiple providers. Additionally, Backpack Health’s patient empowerment platform allows us to manage deployment to scoliosis clinics around the world in one solution.”

Backpack Health also offers patients the ability to participate in the collection of de-identified data that may serve to support researchers. Upon their consent, individuals with scoliosis who use Backpack Health’s data management platform will have their data de-identified and entered into current research projects. Data dynamic surveys and e-consent functionality can then be implemented, allowing further patient-reported data to be included in current research.

“CSF serves as an important resource for families of children with scoliosis. We are excited to partner with CSF and offer the scoliosis community further support via our digital tools,” said Jim Cavan, CEO and Founder of Backpack Health. “Together Backpack Health and CSF will offer patients full control of their own health journeys.”

Backpack Health’s partnership with CSF furthers its mission to empower patients with rare and chronic diseases by engaging more patients and contributing to medical research.

About the Children's Scoliosis Foundation

The Children's Scoliosis Foundation is a patient and family driven nonprofit that provides grants to families struggling with scoliosis - including patient advocacy grants and reimbursement grants for the costs of traveling to seek specialist care. CSF also provides grants to other scoliosis nonprofits working in under-served countries around the world. Learn more at www.childrensscoliosisfoundation.org.

About Backpack Health

Backpack Health, LLC builds secure, innovative information tools to help people manage their health journey – including wellness, illnesses, injuries, and chronic health conditions. The Backpack Health mission is to make it easy for everyone to access, own and control their health information to support better health care and attain better health for themselves, their loved ones and their communities. Backpack Health provides a platform for organizations to engage patients, collect up-to-date data and build communities around the globe. To assure data protection for its users’ information, Backpack Health complies with the EU General Data Protection Regulation (GDPR), adheres to its data protection principles, and participates in the EU-U.S. and Swiss-U.S. Privacy Shield Frameworks. Learn more at www.backpackhealth.com.