Press Releases

2019

Backpack Health to Provide Specialized Support for Patients with Psoriatic Arthritis and Lyme

December 19, 2019

Backpack Health Launches Rare Disease Research Study in Partnership with Project Alive

November 19, 2019

Backpack Health Appoints Charlotte Berlin, RN, Senior Director of Client Engagement, as Ecosystem Growth Continues

October 30, 2019

Backpack Health Appoints Daniel Sands, MD, MPH, as Chief Medical Officer and Vice President of Medical Affairs

October 10, 2019

Backpack Health and Project Alive Partner to Advance Hunter Syndrome Research

August 13, 2019

Backpack Health Expands Leadership Team to Establish Nutrition and Wellness Group

July 23, 2019

Patients with Hereditary Hemorrhagic Telangiectasia (HHT) Gain Full Access to Critical Health Data Management Platform

July 18, 2019

Backpack Health Appoints Lauren May as Vice President

July 15, 2019

Allergy & Asthma Network Partners with Backpack Health to Grant Patients Easy and Immediate Access to Critical Health Information

July 10, 2019

Backpack Health and Ehlers-Danlos Society (EDS) Partner to Ease Patient Journeys for Global Community with Proprietary Health Data Management Platform

July 2, 2019

Cerebral Palsy Research Network (CPRN) Partners with Backpack Health to Offer Community Members Health Data Management Tool

July 1, 2019

Fabry Support & Information Group and Backpack Health Collaborate to Connect Patients with Resources, Research and Community

June 21, 2019

Ehlers-Danlos Syndromes (EDS) Organization to Offer Community Members Health Data Management Tool

May 22, 2019

Backpack Health Expands Platform Functionality to Integrate Users’ Personal Health Records

May 21, 2019

Digital Caregiver Platforms Collaborate to Improve Understanding of Patients and Their Needs

May 1, 2019

Backpack Health and Rare Patient Voice Partner to Connect Patients to Research Opportunities

April 1, 2019

Addressing Health Access Challenges for Transgender and Non-binary Community, Backpack Health Establishes Dedicated Group on its Health Data Management Platform

March 26, 2019

StickyJ Medical ID & Backpack Health Partner to Improve Instant Access to Critical Health Information

March 5, 2019

The National Adrenal Diseases Foundation to Empower Patients with Backpack Health’s Data Management Platform

February 11, 2019

Key Duchenne Organizations Unite with Backpack Health to Support Patients with Health Data Management Platform

February 6, 2019

The Canadian Association of PNH Patients (PNHCA) and Backpack Health Collaborate to Connect Patients with Resources, Research and Community

February 5, 2019

Patients with Hunter Syndrome Gain Full Access to Critical Health Data Management Platform

January 31, 2019

Backpack Health Expands Multi-Lingual Functionality with Italian Language Version of Cloud-Based Health Data Management Platform

January 24, 2019

The Dysautonomia Support Network Offers Backpack Health to Members for Easy Management of Health Data and Treatment Information

January 7, 2019

EDS Wisconsin Network to Provide Health Data Management Tool to Community Members

January 3, 2019

2018

Patients with CHAMP1 Disorders Gain Easy Cloud-Based Access to Personal Health Data and Medical Treatment Information

December 20, 2018

Georgia Ehlers-Danlos Syndrome (EDS) Network to Provide Comprehensive Health Information Management Tool to Community Members

December 10, 2018

Caregiver Action Network and Backpack Health Join Forces to Promote Digital Health Tools During ‘National Family Caregivers Month’

November 26, 2018

Healthy Preparation for Holiday Travel

November 15, 2018

Children’s Scoliosis Foundation Offers Members Advanced Health Management Tools Via Backpack Health

November 8, 2018

Rare Disease Patients in Low-Income Countries to Receive Improved Access to Key Data Through Backpack Health and Care Beyond Diagnosis (CBD) Partnership

November 5, 2018

Mobile Health Platform Provides Life-Saving, Medical-Treatment Information to Caregivers, Healthcare Providers & Emergency Responders

July 30, 2018

Akcea and Ambry Genetics to Launch hATTR Compass, a Genetic Testing Program for Patients with Suspected Hereditary ATTR Amyloidosis

June 12, 2018

Injured Veterans Stay 'On-The-Move' with Mobile Health Information App

June 5, 2018

No-Cost Digital Health Info Tool Made Available to Marfan Syndrome and Related Disorders Communities

May 17, 2018

The Marfan Foundation & Backpack Health Partner to Offer Unique Tech Platform to Help People Living with Marfan Syndrome and Related Disorders

April 24, 2018